Dr. Visit May 5, 2015

Thomas had a horrible headache last night and it was after 10 p.m. with Tylenol before he was able to get to sleep.  He was dizzy even when laying down.  Yesterday, he wanted to play water balloons, so we "sat" him on the driveway to play water balloon toss.  It's really hard to see your child not feel steady enough to walk on his own or stand up to play.  We take a lot for granted each day.

  Stairs are really hard for him today and he has to slide down on his behind.  He doesn't like people knowing that he's real unsteady; especially in public.  He doesn't like me to hold on to him even when he needs it.  He also doesn't like to show his "weaknesses" to dad.  He wants to be big and strong like his larger than life super hero Dad.  This makes it hard on Joe because Thomas gives him "false hope" that he's feeling better by joking with Joe or shooting hoops for a few minutes only to not be able to get off the floor afterwards. 

This morning we decided to call our doctor and bring him in rather than wait for the Rheumatologist to call to schedule an appointment.  We have been communicating with our doctor and his nurse the past few weeks.  We wanted him checked out, including his blood pressure.  Our doctor doesn't have a theory about what is going on.  Thomas' blood pressure stayed steady while laying, sitting and standing.  We took him for labs next door after the appointment.  They will be testing for all kinds of things from the normal counts, to ANA and muscle inflammation.  We were also referred to a Pediatric Neurologist.  He would also like him to have an MRI and skin biopsy.  Our doctor does NOT think it is Lupus because Lupus is so rare in men and even rarer in young children.  So good news or not; I haven't decided.  We are hoping the blood work will give us a clue as to what is going on and how to proceed- either with the Rheumatologist or go the neurology route. 

Thomas obviously isn't making it to his hockey tryouts again tonight.  He did get to pick yet another Lego set for getting his blood drawn and going to the doctor.

We just tried Frankincense on his temples and forehead to see if it would help with his dizziness.  So far he hasn't noticed a change.  We will try it again in the morning.  The oils take time to build in his system.  We used the diffuser with the blend Joy in it today after the doctor and it did seem to calm him.  He's also still drinking his "Ninja juice" in the morning.  Sometimes. he seems okay and plays normally but he says he is in constant pain; it either lessens or he ignores it at times.

Trying to be patient waiting for the test results.  We know God is in control and has a plan for us.  In a recent Bible Study, I read this; "God may not take away all your troubles, but He will bring you through them."