Chronic illness upheaval April 30, 2015

Anyone with a child or family member in their care, who suffers from chronic illness can relate to the emotional upheaval that is often present in ones family.  This morning Thomas was very dizzy and everything hurt.  Everyone's schedule gets mixed around when these days happen with hi,.  He needs help walking and moving from place to place.  His big sissy gets very worried about him and she isn't sleeping well due to the upheaval in our home. 

Nothing seems to be helping him today.  Tried 2 cups of lemon water, E-Lyte, Epsom salt bath and the different oil combinations.  The bath seemed to put a little life back in him and he enjoyed playing with his color changer cars. After the bath, we used the calming cream on the bottoms of his feet.  I am concerned as this dizzy spell comes only a week after the last one.  Before they were more spaced out, nearly a month between each episode.  We kept him home from gym class today.  He's been playing Lego's again today.  He crawls around with them on the floor.

The woman that we are working with suggested getting some "starch" into him like french fries.  So I made some french fries with organic potatoes, olive oil and salt.  I baked them on a ceramic baking sheet in the oven.  He enjoyed them; not sure yet if they helped but they were yummy nonetheless.  He is talking and smiling a bit more this afternoon.










I'm tired and frustrated.  Autoimmune disorders have so many unknowns and then throw in a possible concussion and its hard to know what's going on.  We keep trying new things but sometimes it's hard to hold onto the hope that we will one day find the answer.  I am blogging (or journaling as they'd say back in the day) as a form of release.  If you choose to check in and read the blog from time to time hopefully we will be making improvements or at least giving ideas to try if you are in a similar situation

Too dizzy after eating breakfast to sit up