We had a variety of blood tests run on Thomas this week. They included a CK or CPK test which looked at muscle inflammation. A Connective Tissue Cascade which checked for additional autoimmune diseases like Lupus. They also ran a CBC and a comprehensive metabolic panel. All tests came back normal. So while that's good news it doesn't get us any closer to figuring out why all these symptoms are happening to him.
The headaches seem to be getting worse and the dizziness is a daily thing with him now. Recently, late afternoon and early evening are goof periods of time for him. He tells me he wakes up and his head hurts and he is dizzy in bed. Right now around 6:15 p.m. he is happy, silly and goofing around. We have talked to him about not running and just taking it easy. For the most of the day, he laid around or played Legos quietly and complained of a bad headache. We did go outside and toss water balloons in a circle. He needed assistance with stairs again today. He says he feels like he will fall forward down them.
We tried a new blend of oils today but it didn't seem to help and we ended up giving him Tylenol around 2 p.m. He said that didn't help either and it wasn't until about 4:30 that he started to perk up. When he perks up he talks and talks and talks....:-)
I spent a good deal of time on the phone trying to learn about the costs ($3500- ughhh!!!_, procedures, insurance requirements, pre-certifications etc.. of the MRI that was ordered. We are waiting for the Pediatric department at the hospital to call us back to schedule the actual MRI. Hopefully, he will be able to handle being in the machine with guided imagery (a doctor talking to him the whole time), otherwise they will have to sedate him.
So that's where we are at right now. Thank you all for your prayers.
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