Our Warrior

When I left off in the last post, we had just been to our Indiana doctor and had a new regiment to work through.  Our local doctor agreed with the approach but not the dosing.  He did not want him on as high of dose as it was recommended by the other doctor.  So we decided to continue to work with the local doctor until our next appointment in Indiana.  Thomas is back to visits every 2 weeks in town.  Today we had yet another NAET treatment plus muscle testing for his various supplements.  We will be increasing most of them so please pray with us that the detox will be effective and yet not miserable for him!  His Lyme is still active and his adrenals are not working as they should.


I am to journal everything he eats and how he feels each day to see if we can track any pattern to his "bad days".  Thursdays are typically "bad" days and it was this way yesterday as well.  It is likely from "over activity".  We have a full (very fun) Wednesday with our home-school group followed by hockey practice.  This time on Wednesday Thomas had a headache during partnership.  It was so bad that he came and told me and then was not able to participate in Lego builders because "looking at the instructions hurt too much".  For those of you who know Thomas; Lego's is a HUGE love so I knew he was struggling more than typical.  On Thursday I wasn't overly surprised when he laid around the whole day.    He did his math and a few other school items but mainly rested and watched TV to recover.  Those days are so hard to watch him struggle and not feel well.

 It's a fine line between
what is too much activity both emotionally and physically.  While it would not be emotionally healthy to take him out of sports, the sports do wear him down physically.  We have to work at keeping him extra hydrated and his energy levels above the  invisible illness threshold.  I had a conversation regarding this with our doctor and he talked to Thomas about what he loves to do.  Thomas loves hockey and lacrosse and playing with friends.  To eliminate those things would likely cause depression which in turn would lower his energy level thus giving the Lyme a stronger foothold in his body.  
Our doctor again recommended Sacred Frankincense to help.  I think we are going to try it again.  Its about $90 a bottle so its a hefty investment that we've done before but can't for sure say that it made a huge difference.  It is hard when you are trying so many things at once to know what is really working and what isn't doing anything .  He was using it previously and he had good blood work results and was feeling good....  His doctor says we need to figure out what we cut out that he must have needed to be able to fight the Lyme.

The doctor today spoke with me regarding the need to keep Thomas emotionally stable as well as physically well.  If he is too stressed or emotionally unhappy it brings his energy levels down and the Lyme just battles on reeking havoc on his whole body.  I have to keep my emotions positive around him too and not let him pick up on anything negative feelings like worry etc...  We have been continuing our "I am brave, I am strong, I am a warrior, I will overcome, I am a warrior" mantra but I know I harbor feelings of worry and doubt coupled with frustration at not being able to find a cure.

Yesterday in one of the home-school classes I teach I had one of those "I would do anything to take this pain from you moments".  Several of the boys were talking about how they were recently ill and recovering from colds that "lasted forever" at "3 weeks" and how with a pill everyday for 10 days they would be all better.  Thomas quietly said "yeah like Lyme is forever".  The rest of the boys kept on with their building but my heart broke a bit in that moment.  If only he could take a pill and in 10 days wake up all better.....

He got to ride up front in Pa's truck to his doctor because our vehicle was in the shop.  Might need to borrow it for the next appointment so I can see his beautiful smile :-)

It's so hard to describe what he goes through especially because the "good front" he puts up when he does participate.  Most kids and parents he encounters wouldn't have a clue what he is going through.  He is definitely a warrior and pushes through whatever he can in order to do a gym class or a sports practice.  It's at home during those long hours of recovery, the tucking him in at night with ice packs lining his body to calm the pain, rubbing peppermint oil on him during another headache, massaging his calves as they ache, the hours of supplements, doctors appointments and treatments that you see the true picture of Lyme and the devastating effects it can have on a child.