Our Autoimmune Lyme Journey: NEVER ENDING

There are days, weeks, months on this Lyme journey that just drain you emotionally, spiritually and physically. I cry out to God when will it end, when will my son be healed and no longer in pain, when will our family be able to put this journey behind us. The doubts creep in, will he never over come or will there always be times when it flares it's ugly head. I know in my heart that there's a purpose, a reason and that we are learning so much as we go forward.

I haven't update in awhile mainly because I haven't set aside time too but as I want to chronicle this journey for Thomas I am going attempt to think over the past two months. The holidays were amazing and we enjoyed Daddy being home from work with us. Thomas did really well and we made sure that his foods throughout the whole season were within in his diet guidelines. We discovered a delicious banana cake recipe made with almond butter and a small amount of honey. Topped with creamed bananas and coconut milk for frosting quickly became a new family favorite.

After the holidays Thomas slowly seemed to be more tired and then the leg pain returned. We tried increasing minerals when he had the pain and it would subside by morning. It has continued though to be a frequent occurrence. Dark circles are once again prominent. We spoke with his doctor and will be seeing him on the 27th for a complete assessment. Meanwhile we have cut out any honey and maple syrup from his diet as it seems that whenever he starts having these on a regular basis we cycle back through not feeling well.

It's frustrating to me as a mom to watch him be in pain and it's so hard to describe to others including his doctors how I know something is wrong. For one he stops talking in his usual hundred words a minute fashion. He also wants to be hugged and held so his sisters and I take turns with that. I love snuggling him but I long for a time when it's not because he's in pain. He also is really tired and will lay around most of the day only moving to get food and then finding somewhere else to plop. This last round he went 9 days where he was really quiet and just not feeling well. Today is day 3 of being back to semi normal. Last night his head and legs hurt. He sleeps on ice packs on his back, legs and head. This sweet 10 year old was beyond excited when I ordered an ice pack large enough for his whole back. He couldn't wait for it to freeze so he could try it out. In my mind that is super sad and indicator of how we cannot gauge the constant pain he is in.

As it is, we are back to waiting to see what this next appointment brings. Questioning whether something could have triggered it beyond the increase in honey and maple syrup. Was it because we switched to Costco's organic ground beef from Earth Fare's Grass Fed one or that he started having organic milk on homemade granola, was it the full moon....... Next month we travel to the Naturopath and will see if that sheds anymore light on what's going on. Meanwhile, we take it one day at a time and pray continually for his full healing! He has been able to continue participating with his hockey team and loves it. We are thankful that he can be schooled at home so that he can play hockey and still get the rest he needs.