Fall is here

September 26, 2016

When I left off 2 1/2 months ago we had just gone through another round of blood tests.  The first set of those tests indicated elevated CK levels which meant that we had the privilege of repeating the tests one week later.  Thomas was a trooper but I am pretty sure a prize was involved to get cooperation :-)  The retest came up in the normal range so we continued with Physical Therapy 2 times a week and scheduled the appointment with Physical Medicine.  The Physical Medicine doctor really had nothing to add in regards to the leg pain other than that it was not Muscular dystrophy.  He referred us on to a pediatric neurologist at U of M.   That appointment is set for December.   In early August we made a trip down to Indiana for the naturopath.  Thomas had NO spirochetes in his cells or cell walls!  We were ecstatic!! His mineral levels were very low so we bought a case of minerals.  The mineral supplement gets mixed into juice and is actually something Thomas looks forward too because it tastes yummy.  The doctor said that the low minerals could be the cause of the leg pain.  A week on the minerals and Thomas stopped complaining of leg pain!  We decided to take a break from physical therapy as we didn't feel it was changing anything and it was just another appointment to get to.  Thomas started his regular hockey season just after Labor day and so far so good.  He did have a tough first game and looked awful when he came off the ice.  His eyes had dark circles under them and he felt miserable.  He had forgotten his water bottle with his distilled water in the locker room so he didn't have anything to drink during the game.  He was miserable the rest of the evening and I was really second guessing if we'd made the right choice to put him into hockey again.  He was much recovered the next day. Now we focus heavily on the water intake and practices and games have been going smoothly.  This week he has been struggling to fall asleep but I am hoping that it is a sign that he just has more healthy energy than usual.  I won't say that we are "breathing easily" yet as it's hard to let go of wondering "what's next?" but we are trying to trust in God's ultimate plan for us and Thomas.  We are definitely enjoying the freedom of not constantly being concerned that he will wake up miserable or not feel good after an activity.