Peace, the Moon, Germany and NAET

Oh my, we have been busy this week connecting with various individuals in our community who have walked or our walking a similar path that we are in trying to beat Lyme.    I've had a lot of long talks with God asking for wisdom and guidance as we choose what avenues to pursue.  My other request has been for a sense of peace.  One verse that was helpful this week was Is.26:12 "Lord, you establish peace for us; all that we have accomplished, you have done for us."

Archery lesson at Home-school Camp field trip

Crazy correlation but after my last post where I wrote about how Thomas was sick on Sunday to Monday with a high fever, I learned that there is a phenomenon related to the moon that many Lyme sufferers attest too.  Typically, during either a full moon and/or a new moon people with Lyme will experience an increase in symptoms.  Sunday (13th) was a new moon.  It's all theories people have come up with but some are in relation to the gravitational pull (like tides) and the fact that our bodies are mostly water.  Apparently the spirochetes move around quite a bit during this time and often split into two thus making the person feel worse.  Here's a site that explains it http://www.tiredoflyme.com/full-moons-and-lyme-disease.html.
It seems so odd yet I am curious to see if it really does seem to affect Thomas.  June 2 was a full moon this year and it was a HORRIBLE day for Thomas.  He didn't walk the whole day and could barely sit up on his own.   That date has been etched in my mind because I truly felt like I was losing him and the doctors had no answers.  Apparently this weekend, the supermoon is predicted to be especially bad for Lyme sufferers.  His brother's birthday is Sunday so I truly hope this is not the case but as this blog is shared with others in similar situations, I like to write on as many things as I can, that I come across.

I was connected via our massage therapist with a local women who suffered horribly from Lyme.  After 38 doctors including 2 solid years with a Naturopath, she was told that while they had "brought up her immune system, there was nothing else they could do to get her better".  She was then encouraged to explore a place in Germany called the Fach Clinic.  It took several months of prep including lots of supplements and the insertion of a port (like cancer patients get) here in the states.  In Germany, the first 6 days consisted of more supplements including things like IV Vitamin C.  Then you were put in a Hyperthermia bed while you were fully anesthetized.   They slowly raise your body temperature to 107 degrees and then for lack of better words "bake" you for 6 hours.  This kills the spirochetes.  Then you go through another 6 days of immune system prep including IV antibiotics.  These antibiotics are the really strong ones that are considered cyst busters.  This is needed because while the heat kills the spirochetes it does not destroy the ones that have turned into cysts.  Then back in the Hyperthermia bed.  You stay for a minimum of 18 days in special houses for patients.  Everything from air fare, room/board, all food- whole and organic, preparations, medicine is included together.  For her and her husband it was about $35,000.  It has been a year since she went and she is now able to enjoy life.  She walks and swims where she was bed ridden and not able to talk or read.  She still has some issues, tires more easily and she takes supplements still.  There are lots of kids over there being treated.  Many were there because of cancer.  One 7 year old boy came in with a brain tumor while she was there.  The boy was barely alive- not talking or able to sit up, after one time in the Hyperthermia bed, he was talking and watching cartoons.  They keep you on a dairy free, sugar free, whole foods and totally organic diet too.  The German doctors tell you there is no 100% cure but they can help you have a more productive life.  The website to get connected with the doctors is lymeandcancerservices.com/clinics/fach-klinik

On Monday, Thomas woke up super excited for Motocross at the fair.  This event has become a tradition over the past few years.  After breakfast, he decided that he was really tired and wanted to go back to bed.  He ended up sleeping for 2 hours and 15 minutes.  When he got up he told his big sister, that "now I am only 1/2 tired so maybe if I sleep once more before motocross then I will be able to stay up to see it".   He did end up resting for a little over an hour in his bed in the afternoon.  We had a great time at the fair playing some games and watching motocross.  His legs hurt a lot by the time we left but he did really well!

With Meme- Yummy Lemonade and he won a Ninja Turtle

Being silly with Pa

 Wednesday was our first NAET appointment.  NAET falls under Chinese medicine.  Thomas was muscle tested for a variety of things.  It's an odd procedure if you haven't had experience with it prior.  The doctor has substances in little vials and you hold onto them and he tests your strength while holding them.  Thomas is having huge issues with corn.  Lucky for us (heavy sarcasm) corn is not just corn but it is also used to make citric acid, maltodextrin, dextrose and xanthan gum to name a very small few.  Here's a website that gives a more comprehensive list (umm say like 150 different names of things made from corn) http://www.cornallergens.com/list/corn-allergen-list.php.  Now at first I thought "oh not a big deal to remove corn".  We've been against corn for awhile unless it was organic because all other corn is a GMO.  Then I find out that we have to remove all meat that has been fed corn. Thanks to Monsato and their Round-Up pest resistant crops, corn in America is the ever staple food. It's cheap so we feed it to virtually all our animals, make gasoline out of it and sweeten our foods with it.  The micro toxins in the grain end up in the fat and meat of the animal and Thomas' body is unable to handle it.  Thankfully, I was able to buy grass fed hamburger meat and steak at Earth Fare but chicken and pork are out, which also means no eggs.  The good news is that removing the corn from his diet should decrease his headaches!  I am hopeful.  I asked him tonight if he felt any different after having the treatment and he said "well my head doesn't hurt."  Praise the Lord!  Please pray that the headache stays away.  He has literally had a headache for 3 years.  We have started as recommended having him on a high vegetable, low starch diet with no dairy, grains or corn.  Doesn't leave much to choose from :-(  However these changes are not permanent diet changes although corn will take a bit longer to add back in and he does not recommend that anyone consume dairy products.   He also is to drink only distilled water.  This is because he is not absorbing minerals properly and until that gets corrected the distilled water helps flush out all the inorganic salts.  He said it would be 2-3 weeks on distilled water and Thomas likes the taste so that was easy task to work in.  When he first gets up he has to drink 8 ounces.  Then we set a timer for an hour for him to have another 4-6 ounces.  He repeats this hourly until 2 p.m. and then he can slow down on his water consumption.
Thank goodness or I'd likely have a lot of wet bed sheets to take care of each morning :-) 

He has to hold the vial for 20 minutes after the treatment

His first NAET treatment was called a BBF (brain body formula) and it was a neurotransmitter formula.  Thomas' nervous system is constantly working and therefore even though he is sleeping, he is not sleeping well.  That would explain the need for all the naps and lay down rest times during the day.  We opted for using the electro stem laser on Thomas instead of acupuncture.  Joe and I agreed that acupuncture needles at this point were liable to make Thomas run screaming out the door.  Thomas said the device just vibrated on the areas touched with it.  He also explained to us why grains aren't good for us.  Basically, a grain like wheat in unaltered state can be stored for thousands of years but as soon as it is milled or processed it becomes nutritionally dead in a few days so every single grain product you buy in the store has no benefit to you.  In the coming weeks we will be adding a supplement called Diatomaceous Earth- yup food grade dirt!  This will help with his silica levels which should make a huge difference in how he feels including his leg pain.  I asked the doctor how long before we would see notable differences because he stated that Thomas would improve rapidly.  I asked "by Christmas?" and he said "oh yes, before Christmas!".  We made appointments each week through the end of October at this point.  I just realized today that Christmas is only 3 months away from today so that means if this is the right treatment for him, he could be feeling a lot better in the very near future! 

I cancelled our appointment in Grand Rapids for now at the Complete Wellness Center as we want to give this a try.  Thomas does not like long car rides and for him anything over 20 minutes is long so if we can get successful treatment close to home that will be for the best.  However, we are not ruling out other locations.  A friend shared info on an office in Indianapolis, In and Joe has been researching a place in New York. 

Yesterday he had a great day and seemed more like himself.  Today he did great at swimming class and completed all his schoolwork by noon!  Feeling so happy and relieved for the moment at least :-)