So good news is his mineral levels are coming up and he didn't have any of the ghost cells that were prevalent 7 weeks ago. He does still have lots of thin cells. He also had a lot more fungus. Apparently it's pretty common to see an increase in fungus from the Borrelia (Lymes), which basically shakes up the fungus. Unfortunately the Borrelia was not gone. We could see the worm like spirochete. Borrelia is known to "re-hatch", thus why people with Lyme often have up and down periods of feeling better and then terrible.
He recommended a 12 day course of strong probiotics to help with increased fungus. We also started the monoimmune up again due to the re-hatching. Everything else is staying the same at this time. We are scheduled to return on September 2 unless we have issues that require additional attention between now and then.
Interestingly, I had the doctor look at the rash that is on Thomas' torso and has been since October. His first thought was it looked similar to rashes people get from being allergic to pet dander. After examining his blood, he concluded that it could also be from the ongoing fungus and may clear up when we get to the liver flush part of his treatment.
The magnesium/potassium wasn't doing the trick for leg pain. The doctor said the other possible cause could be a low grade infection that typically starts after age 6 but can happen as early as age 3. Thomas started complaining of leg pain when he had just turned 7. As we work through the protocol we should be able to eliminate the leg pain. It had gone down but had started back up again when we stopped the mono immune so maybe now that we are back on that, we will get a handle on it.
When the doctor was done with Thomas, I let Thomas go out to the bathroom and then he sat with his book in the waiting room so I could talk to the doctor frankly. I asked him for his opinion of the upcoming hockey season including the August skates. He was skeptical about the August skates and didn't think that Thomas would be ready for the season come September. He stressed the importance of not "running Thomas down". He would get sicker if we overdo it. He wants him to do the things he loves but we have to be very cautious. If the borrelia gets under control then he should be able to handle the August skates at just an hour a day. The doctor mentioned that Thomas was a very sick little boy and that this bacteria is very tough to treat. As we go through treatment we will be uncovering other issues to treat and maintain his system. He is hopeful that eventually Thomas' hair will regrow. It is very likely that the Lyme bacteria was responsible for Thomas' ITP back in 2010. It causes so many things!!
Joe and I are still discussing and praying about the hockey choices to be made. We may go ahead and try the August skates. They are Tuesday and Thursday mornings from 9-10 a.m. It would give us a better idea of how it affects him. Obviously, if it has a profound negative effect we would stop going. I am very wishy-washy on trying them because I see how easily he tires. He often lays down on the bench at our nook table after eating a meal and he still curls up in his bed several times a day to rest a bit. It's harder for Joe to see the whole picture being that he is at work most of the day and often at sports practice at night. However, Thomas is sooooo much better than he was. He's reading again every day for long periods of time. He's swimming and riding his dirt bike. Overall he's made huge improvements.
We also made it to our chiropractor appointment and he approved Thomas for massage therapy. The Naturopath was also in favor of massage for Thomas. We are waiting to hear from the therapist to schedule his first session. I am interested in trying Craniosacral massage for him to help with his headache pain.
I am working on letting go of some bottled up anger and frustration in relation to the fact that this could have been caught sooner sparing him so much pain. It's a classic story of those on a "Lyme's journey" from all the testimonials I've read about how long people suffer and how many doctors they visit before figuring it out. Our doctor said some people he sees have been suffering for 15 years going from doctor to doctor before getting an answer. I am grateful that we have only been at this for a little over 5 years now.
Thank you for your prayers! Praising God for the small victories every day!! I am seeing improvements even yet today after starting the probiotics and monoimmune yesterday.
| Homemade chalk paint- alien fly guy to the moon |
| He cleaned his dirt bike all shiny before riding |
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