We had a follow-up appointment with our family doctor on Friday. I was hoping to discuss what we should look into next and how to bring Thomas' some relief from his pain. I was interested in exploring further Thyroid testing even though the initial TSH levels were normal. I had read a lot about the need to do a reverse T3 and T4 screening to have an accurate picture of what was going on with his Thyroid. Every medical doctor he's gone to whether in the ER or a specialist, has mentioned Thyroid but once they hear he's had a TSH test that was in normal range they dismiss it. Well needless to say our family doctor has literally "washed" his hands of trying anything else with Thomas. He flat out said that he won't order any more tests; claiming it is not healthy for Thomas to have test after test come back normal, when Thomas himself does not feel normal. Hello, we get that but so now we tell him "sorry honey, no one knows what is going on so just do your best and suffer through it!". He's 9!!!! His recommendation was to refer to Mayo in Minnesota and in the meantime go to a child psychiatrist and put Thomas on Prozac. He also said he could order an ultrasound for the lymph node on Thomas' neck that is swollen and painful and has been for over a month even though he has no other outward symptoms of an infection. I've read a lot of books that have commented on when the doctors don't find something in the tests they've ordered they turn it over to the psychological side of medicine. Even having read that prior, I really wasn't prepared to have our family doctor that has known our family for years; come to that conclusion.
I called down to the Naturopath in Shipshewana that we had gone to 3 1/2 weeks prior because I had noticed in my notes from that visit that I wrote that Thomas had a Thyroid deficiency and needed Iodine but nothing was on the slip that wrote out what supplement to use with him. They were awesome on the phone and were able to get us in yesterday morning to see Dr. William. Thomas and I had a fun time on our road trip down. Turns out the reason he hadn't started him on Iodine yet was because he needed to work through the bigger issue and that was the bacteria borellia which is the same bacteria as Lymes. He put a new sample of Thomas' blood on the microscope and projected it on the computer screen for us to see. The awesome news was there weren't any "worms" swimming around this time. His other cells were looking better too. The doctor and myself were very pleased with his progress. He said that Thomas "was a quick responder". He still needs minerals which we are using the mineral water supplement. The cells that need minerals look like "ghost cells" as their outline is very pale on the projection not bright white like the healthier cells. Since the bacteria was clearing up, we were able to take him off one of his supplements and start the Iodine for his Thyroid. We also added a potassium/magnesium blend to see if that helps his leg pain. If his legs are still hurting in three weeks we are to come back in. The Naturopath does NOT think the leg pain is just growing pains. He says the bacteria can also cause the pain and we are still working on making sure it gets completely out of his system. Dr. William said not to do the Prozac- which we never were going to anyways. He said it's just what doctors end up turning to when they don't know. He said the Prozac would just put Thomas in a daze so he didn't know what he was feeling.
His headaches are much improved and the dizziness is barely present. Thursday and Friday night he went to bed without tears and enjoyed reading stories before falling asleep. Last night he was really tired but his legs were bothering. He asked me to massage them again and then he was able to fall asleep. Slow and steady progress. He still tires easily. Yesterday, we went bowling and had ice cream to celebrate. Hopefully if I don't post for awhile its because things are steadily improving!!
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