Unfortunately after we chose to stick with the dosing recommended by our in town doctor based on muscle testing, Thomas did not improve. Instead his hair has fallen out in multiple spots. While he still sports a long hair style that's able to cover the spots which are between a quarter and half dollar size typically; he now is losing hair in the middle top of his head. Our local doctor ventured to guess that the hair loss was from EMF (basically wifi emissions) and suggested grounding outside (being barefoot) in addition to continuing to use his grounding blanket on his bed. We were not convinced with that theory as he has experienced hair loss in the past so why now was it wifi related..... With that and no reasoning for Thomas' increased fatigue and leg pain we were on alert that something was not right. On June 2, after returning from a fabulous vacation with the whole family we had an appointment with our Indiana doctor. He leveled with us that the spirochetes were extremely high again, there was visible damage to the cells and biofilms were present. Lyme loves to hide in the biofilms making it impossible to destroy unless you can break through the biofilms. We committed ourselves to using the treatment that he recommended since the other course just wasn't attacking it enough. The program is called the Cowden Support Program and it is intense. Our doctor helped us modify the dosing to be appropriate for his size. We also are only increasing the dose every 3 days to help the die off be more gradual. Sadly, once it is being effective Thomas will likely be sick for 6 weeks. He now has various meds 9 times a day plus he has to drink 2 ounces of water every 15 minutes. Drinking the water in the small amounts frequently helps to hydrate the cell more fully then drinking larger quantities less frequently. 
Today is Day 20 on the program and up until yesterday he was doing extremely well. Yesterday the dosing on some of the "killers" went up to 7 twice a day and Thomas had a headache. Today he is very tired and is neck hurts. Next week he has skateboard camp, which was his birthday present from us and he is super excited to go. We are praying hard that he will feel well enough to go.
In the evening, he has a lot of extra doses that we do our best to split up but that means taking meds every 30 minutes after dinner time and before bed. Since tonight I will be at Chris' hockey game, I have lined everything up with labels. (picture above)
The Cowden approach is typically used for 9-12 months. We will be going to the Indiana Doctor monthly and we will not be using are local doctor for now. We've also been in contact with a place in Arizona called Envita. Their approach is both holistic and traditional with IV therapy. IV therapy is done M-F for 8-10 weeks and the cost ranges from $40-$90,000. We have not ruled it out but as it stands right now Thomas is barely old enough to even be considered as 11-13 year olds are case by case. We also heard from our doctor in Indiana that he is now treating someone who did their program and did not get well. Our doctor recommended Hyper-thermal treatments which we've explored before and are only available in Germany and Mexico. He also suggested UV light therapy. Essentially this would consist of a doctor removing 200 cc of blood and running through a UV light and then putting in back into Thomas. We are of course praying that this Cowden Approach will do the trick but at the same time we are being mindful to continue researching future options.
