The Dizziness Returns.....

Thomas finished a portion of his protocol on August 14th,  It was a ten week treatment which really lasted 11 weeks because we started slow the first week in order to minimize the harsher side effects of the Lyme being killed off.

Last dose of the yucky stuff mixed in OJ

The first few days off went okay.  He also finished his mineral supplement on the 20th and the Naturopath said not to get anymore until his visit so we can see how he's holding onto the minerals.  He is still taking Monoimmune and CoQ10 twice a day and Iodine once a day.

On the 18th, he had a dear friend over for several hours and they had a fabulous time playing and swimming in the pool.

Thomas and Benny

When his friend left though he complained of a severe headache and just not feeling well.  The next day we had an outing planned with friend's who had rented a lake house for the week.  Thomas started out cautious and just wading in the water but then he went for a kayak trip and eventually started swimming in the deeper water.

Kayaking 

When we got home he was exhausted and mostly watch movies and read his books.  He said he was feeling dizzy.  I then found out that he was also dizzy after playing the day before.  Now these episodes were not severe enough that he was holding onto things or needing assistance walking as in some of the past dizzy spells.  He merely has the sensation that he is falling forward.

Thursday we took it real easy.  He worked on his schoolwork off and on all day and was able to finish around 4:30 p.m.  Yesterday morning, he told me he woke up at 2 a.m. to go to the bathroom and was "super dizzy".  I asked him if it was the dizziness when he had to hold on to things and he said "yes, he could barely get to the bathroom and back to bed".   He also told me "when I woke up in the morning I was still dizzy in my bed so I laid there for a long time before getting up".

Completely worn out

very tired- taking a break
from eating lunch

So now the dilemma is... is the dizziness related to stopping the treatment or too much activity?  Joe and I are leaning towards the too much activity reasoning mainly because back in July when I took the kids camping Thomas mentioned being dizzy again and he was still on the treatment but had had a lot of activity.  The Naturopath warned us to be very careful not to have him over do.




Now we are trying to figure out how to minimize his activity without making him depressed over not doing stuff.  For the most part he knows his limits but he pushes those when around other children or in order to do really fun things like swimming and kayaking.

We bought the boys RC cars and that has been a great activity that Thomas can do with his brother.
Yesterday, we had a chiropractic visit and Thomas is "holding his adjustments" well.  Our chiropractor checked him for any inner ear issues but all was well.  We go back in 3 weeks.  The 28th is our next massage session.  Looking forward to that as he legs still cause him a great deal of discomfort.  We are praising God for Thomas' smiles and his typically good attitude while going through all of this!  I love snuggling with him!

Changed personality....

Life and circumstances definitely do play a role in who we are and how we respond to situations.  I've noticed numerous changes with Thomas as we've been on this journey.  But recently one example stuck out to me of how it's even affected his imagination.  We were laying out in the sun after swimming one day and Thomas tickled me with a clover and said "oh no a microscopic bug bit you and now you have Lyme disease!"  It made me want to laugh and cry all at the same time.  The innocence of childhood has been corroded a way by an awful disease. 

Riding with Daddy

Jumping with Mackenzie

Thomas had his first massage on Monday.  We chose to try a CranioSacral massage with him with a small amount of traditional massage on his legs and feet.  The massage lasted 30 minutes. 
This is not the facility we go to for massage but I liked the description better on this site http://mtacupuncture.com/craniosacral-therapy/   He did fabulous.  I then had the same type of massage as well and it was fantastic!!  Thomas read books quietly in the room during mine.  We go back on the 28th for another massage.  I am really looking forward to helping heal his body through massage as well. 

Thomas had an adjustment at the chiropractor today.  He goes back in 2 weeks to be rechecked.  I am hoping it will help some with his headaches too.  I feel like we are developing a well rounded program for healing for him with the supplements, chiropractic care and massage. 

In my last post, I mentioned that Thomas would be starting hockey skills class on Tuesday morning.  Monday afternoon, we got word that it had been cancelled due to low registration numbers.  On Monday night, I met Joe at the ice rink with the boys for sticks and pucks which is basically open skate in hockey gear with sticks etc...  Thomas was very nervous about it but he wanted to try.  He did okay.  His legs hurt more and he moved pretty slow.  I also noticed how his interactions have changed.  Normally he is super confident and makes friends quickly with anyone his size.  He shied away from the other boys and did not exhibit the confidence he's known for at hockey.  It made Joe and I sad to see the difference.  Needless to say after much thought and prayer, we have decided not to have him play on the travel team this year.  The hope is that he can play on a house team as he feels up to it.  House teams do not begin practicing until October so that gives us another month over travel to work up his strength.  The house team also only meets twice a week for an hour at a time where travel teams are 4-5 days for multiple hours.  Thomas is super bummed about this as he's dreamed of playing on the Kwings since he could walk.  He's grown up watching his brother play and could not wait to be old enough for his turn.  We are being very positive with him in regards to this and letting him know that we will work hard with him to have him ready for next year.  His coach has been very supportive and willing to work with us as well. 

Thomas and Joe at the beginning before more people started skating

We are so very thankful for the improvements!  It's hard to comprehend all that he (we) have been through.  Sometimes it seems hazy recalling the moments when he wasn't walking and all the nights he cried himself to sleep in pain.  God is good and we know there is a bigger plan then we can see in all of this.

The article below is a very good read on Lyme.
http://articles.mercola.com/sites/articles/archive/2015/07/29/lyme-disease-tick-epidemic.aspx?e_cid=20150729Z1_DNL_art_1&utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=201507